European Commission Call for Proposals: Access and integration of heterogeneous health data for improved healthcare in disease areas of high unmet public health need

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September 20, 2022 Google iCal Yahoo! Outlook.com

European Commission opened a call on "Access and integration of heterogeneous health data for improved healthcare in disease areas of high unmet public health need" which aims to provide a scalable platform for the seamless integration or linkage of these diverse data at scale, and develop tools to allow the data to be used in clinical care, patient self-management and research in disease areas of high unmet public health.

For their proposed activities applicants should clearly identify a disease area of high unmet public health need¹ taking into account comorbidities and/or functional status, and explain their choice with empirical evidence where possible.

Expected Outcome:

• Researchers, including industry stakeholders, have long-term access to diverse data at scale, enabled by the linkage and integration of novel and cross-sectoral sources, including industry sources. If possible, some of these data should be able to be used for providing evidence to support regulatory decision-making.
• Researchers, including industry stakeholders, have long-term access to new tools that enable the integration and analysis of these data. If possible, some of these tools should be able to be used for providing evidence to support regulatory decision-making.
• Citizens, including patients, are given user-friendly, interoperable tools to access their own health data from different sources to support disease self-management and empower joint health care professional - patient decision making.
• Health care professionals and healthcare providers² have access to integrated data from diverse sources and clinical (and other) decision support systems to deliver better healthcare services to patients and populations in the most suitable and efficient manner.

Scope:

• Develop / further develop a scalable, open platform for the seamless integration or linkage of data at scale from diverse public and private data sources relevant to the disease area selected. These data sources should, as a minimum, include all of the following: clinical trials; registries; patient safety data; routine clinical care; publicly available health insurance data; patient reported outcome and experience measures; and data generated by digital technologies such as sensors, wearables and mHealth apps. Preferably, projects should also integrate data that has not usually been used before for the purpose of medical decision-making.
• Develop / further develop tools focused on the needs of patients, leveraging these diverse data sources to support patient self-management and empower joint healthcare professional - patient decision making.
• Develop / further develop clinical (and other) decision support systems leveraging these diverse data sources to allow clinicians to deliver better healthcare services to patients in the disease area selected.
• Demonstrate the added value of the platform and tools compared to current approaches through a use case (study) applied to the disease area selected.
• Demonstrate the widespread applicability and scalability of the platform & tools using data sources from outside of the project
• Publish sufficient information, including access protocols, on the data that has been used in the project to facilitate long-term access and re-use, while ensuring compliance with the General Data Protection Regulation and other relevant European legislation.

Read more here. 

Proposals deadline September 20, 2022.